Contact us: STAR Foundation P.O. Box 115 Golden’s Bridge, New York email: [email protected] website: www.sallaresearch.org facebook: www.facebook.com/sallaresearch instagram: www.instagram.com/sallaresearch Families - has your email address changed? send updates to STAR Data manager Agnes Jensen via link above at [email protected] (US dollars or Euros) or using this QR code. Thank you! UPDATED STAR WEBSITE Have you had a chance to check out STAR‘s updated website?? https://www.sallaresearch.org We would love to feature STAR family updates from around the globe. Contact our data manager [email protected] so we can share your stories! The website features several ways to both connected and stay involved: STAR FAMILIES CLINICIANS AND RESEARCHERS: https://www.star-foundation.io/get- involved#Researcher To add or update address or contact info: https://www.star-foundation.io/get- involved#Families COMMUNITY ADVOCATES, FRIENDS AND VOLUNTEERS: To join the RARE-X registry: https://www.star-foundation.io/get- involved#Volunteers https://rare-x.org/salla-research/ www.sallaresearch.org page 8 of 8