CHAN-ZUCKERBERG INITATIVE’S RARE AS ONE AWARD In our June newsletter update, we shared that STAR had applied for the very competitive Rare As One project grant from Chan Zuckerberg Initiative (CZI). We are thrilled to report that STAR was funded! CZI was founded by Dr. Priscilla Chan and Mark Zuckerberg in 2015. CZI9s Rare As One Project supports patient-led organizations across the globe by strengthening communities, building capacity, and promoting collaboration to find treatments and cures for rare diseases. With this grant award, STAR joins Rare As One9s global network of over ninety patient advocacy organizations and will receive funding, support, and mentorship over a five-year period. STAR has jumped right in to the Rare As One community, attending a welcome call with other grantees, their 2024