2024 NEWS & PROGRESS STAR’s scientific partners, the independent FSASD research consortium, met for the 17th time in November. The Consortium has grown to 20 research groups from the USA and Europe, with each group bringing different skills and experience, to study different aspects of FSASD in a collaborative effort to speed up learning more about disease mechanisms and treatment possibilities. Thanks to partial funding from organizations like STAR and the dedicated families of the FSASD community, the Consortium is excited to share with us major progress made in the past several years: Clinical Studies: A group of families with children with FSASD visited the NIH Clinical Center (Bethesda, MD) for extensive clinical studies (