Contact us: STAR Foundation P.O. Box 115 Golden’s Bridge, New York email: [email protected] website: www.sallaresearch.org facebook: www.facebook.com/sallaresearch instagram: www.instagram.com/sallaresearch via link above Families - has your email address changed? (US dollars or Euros) or send updates [email protected] using this QR code. Thank you! STAR FAMILIES CLINICIANS AND Share your story: RESEARCHERS: We would love to feature STAR family updates https://www.star-foundation.io/get- from around the globe. Contact involved#Researcher [email protected] for more information! COMMUNITY ADVOCATES, To add or update address or FRIENDS AND contact info: VOLUNTEERS: https://www.star-foundation.io/get- https://www.star-foundation.io/get- involved#Families involved#Volunteers To join the RARE-X registry: https://rare-x.org/salla-research/ www.sallaresearch.org page 8 of 8