RESOURCES FOR OUR STAR CAREGIVERS In November we celebrated Family Caregivers’ Month, where we paid tribute to the moms, dads, siblings and grandparents that are the backbone of our STAR community! Caregiving can be challenging, so we’ve compiled some resources available to help. Have resources you would like to share? Email us at [email protected]. NORD STATE CAREGIVER ACTION RESOURCE CENTER NETWORK In the US, it an be difficult to navigate state- The CAN website, which translates with one- by-state resources available. The National click to 10 languages, offers a Caregiver Organization for Rare Disorders (NORD) has toolbox, a You Tube video channel, wide compiled a database of programs across range of resources as well as a live caregiver many topics, including caregiver support. help desk. See what your state offers at https://caregiveraction.org http://rarediseases.org CAMP VICTORY JUNCTION Camp Victory Junction has summer camp programs (in North RAREGIVERS Carolina, USA) for both children and families (ages 3-16) to enjoy GLOBAL traditional camp activities, with a Raregivers™ is a global network that full medical staff to help! delivers emotional support to caregivers, Salla Disease is a qualifying patients and professionals in rare, chronic condition. Full scholarships are and complex disease communities. They available and applications for 2025 support rare families in 33 countries with: camps are now open! On-line resources visit them at https://victoryjunction.org/ Newsletters, Workshops, & Retreats visit them at (Ben Foglio was a 2024 camper, https://www.raregivers.global/ contact Jessica to hear more!) Page 4 of 8 www.sallaresearch.org