Salla Day "Salla Disease" is named for the region of Finland where patients were first identified. Salla, Finland is a remote area with a national park, ski resort, wilderness area -- and its own celebration day, July 19th, which is celebrated in the parish village with local events. Join us to honor and celebrate our Salla STARs, families, and individuals who inspire us every day and raise awareness and funds to fuel hope, research, and support. Donate Now → RARE Raises Over $25,000 The 5th Annual RARE: A Community Event brought together supporters to raise awareness and funds for Salla disease research and family support. Thanks to the generous community, the money raised directly funded one of our latest research grants. Feeling inspired? We can help you host your own event! Reach out to [email protected] to get started! Check out the highlights → Spring Seminar Series Inspires Families We kicked off our family seminar series with two powerful sessions focused on energy management for caregivers and balancing the needs of all your children. Recordings and resources are available if you missed them! Have ideas for future topics? We’d love to hear from you at [email protected]. Stay tuned for more seminars coming soon. Learn More →