Organizational Update: New Name, Same Mission Our organization has officially changed its legal name from A STAR for Ben, Inc. to the Salla Treatment and Research Foundation, Inc. This change ensures our legal name reflects the breadth of our mission and the global reach of our work, strengthens clarity across communications and partnerships, better represents our commitment to the entire Salla Disease community, and aligns our legal identity with how we’ve been operating publicly. Full update available → Resource Roundup: RARE Siblings Rare Revolution magazine featured a series in its recent issue highlighting the impact of rare diseases on the sibling experience. Four adult siblings shared their experience growing up with a sibling with a rare disease, discussing how their lives were shaped, decision-making as a rare disease sibling, and the support for rare siblings and their hopes for the future. Check out the RARE REV-inar Series →